A Special Club of Fathers

http://www.projo.com/opinion/contributors/content/CT_siegel15_06-15-08_S7ADR1M_v13.412b561.html

 

Whipping up Disability Solutions

http://www.baltimoresun.com/news/local/howard/bal-md.ho.cooking09jun09,0,6432051.story

 

Advocates Express Concern About Rhode Island Medicaid Proposal

http://www.kaisernetwork.org/daily_reports/rep_index.cfm?DR_ID=52365

 

Folsom School Club Trains Students To Work With Their Autistic Peers

http://www.sacbee.com/education/story/945909.html

 

States' Changes Reshape Medicaid

New Restrictions Aim to Save Money

http://www.washingtonpost.com/wp-dyn/content/article/2006/06/11/AR2006061100815.html?referrer=emailarticle

(This was an interesting article to pass on regarding other States’ Medicaid Changes, this was written June 12, 2006, but is very relevant today for Rhode Island.)

 

For all parents on Mother's Day

http://www.sarnet.org/lib/todaySAR.htm

 

Let Congress know you want more autism funding. The Autism Society of America hosted its Day on the Hill, with advocates from across the country storming Capitol Hill to support ASA’s legislative priorities. The program included a rousing speech from the Chair of the Coalition for Autism Research and Education (Autism Caucus), Chris Smith (R-NJ), and legislative updates from Congressional staff, allies in the disability community and other supporters. Participants also received training on effective advocacy strategies, working with the media, and lobbying at the state and local levels. Armed with these tools, participants then took to Capitol Hill to build support for ASA’s legislative priorities.
Even if you weren’t able to travel to Washington for our Day on the Hill, you can still support ASA’s advocacy efforts by asking your legislators to cosponsor legislation to improve services for individuals with autism here at home, and around the world!
Support legislation to improve the lives of ALL individuals affected by autism. Click here for details: https://secure2.convio.net/asa/site/Advocacy?cmd=display&page=UserAction&id=196
Thank you for supporting our efforts to increase autism awareness, and promote early autism diagnosis and therapeutic research.
Sincerely,
Lee Grossman, President and CEO
ASA Member since 1991
Parent of a son with autism
 

Learn from the true experts - those on the spectrum
Jerry Newport

 http://www.nlconcepts.com/autism-jnewport.htm

 

ARE ANIMALS AUTISTIC SAVANTS

http://biology.plosjournals.org/perlserv/?request=get-document&doi=10.1371/journal.pbio.0060042

 

DEIDRE IMUS HELPS SCHOOLS GO GREEN

http://www.usatoday.com/news/health/2008-02-03-deirdre-imus_N.htm

 

NATIONAL AUTISM ASSOCIATION AND AAP: ELI STONEGATE

http://www.ageofautism.com/2008/01/national-autism.html

 RI DEPARTMENT OF HUMAN SERVICES EXPANDS REWARDING WORK, ONLINE SERVICE FOR PEOPLE WITH DISABILITIES TO HIRE STAFF

(CRANSTON, RI) -- The Rhode Island Department of Human Service has expanded Rewarding Work (www.rewardingwork.org), a web-based service for people of any age with disabilities or their family members to hire direct support professionals or personal care assistants. Through use of an accessible, interactive website, Rewarding Work allows consumers and families to access a comprehensive database of hundreds of qualified care providers.

The service, which has been available since February 2007 for adults with disabilities who participate in the Rhode Island PersonalChoice program, has been expanded to serve Rhode Island residents who take part in the consumer-directed Personal Assistance Services and Supports (PASS) and Respite programs.

Department of Human Services Director Gary Alexander said, "The Department of Human Services is very pleased with the expansion of Rewardingwork.org as a way to help people find the workers they or their family members need to remain in their homes and community."

Rhode Island families who receive support through PersonalChoice, Respite or PASS may be eligible for free subscriptions to Rewarding Work.

Consumers who do not participate in state funded programs can purchase a subscription to Rewarding Work for one month for only $10; three months for just $25. A six month subscription is $50 and a one year (12-month) subscription is $90, which is like receiving three months for free.

Rewarding Work makes the search process for support staff much easier than traditional methods by letting consumers choose from hundreds of people with the skills to assist them in living independently. By clicking a mouse, users can find the personal assistant (PCA) or support worker who best meets their needs. Rewarding Work gives people with disabilities choice and control.

The Rhode Island PersonalChoice program is designed to help residents with disabilities and older persons manage their own assistant services. The individual decides what services assistants will provide and how they will provide them.

The goal of the program is to enable people with disabilities who direct their own assistant services to have the chance to depend on themselves instead of an agency. This lets them make their own decisions and to take responsibility for those decisions. PersonalChoice allows for more flexibility in daily routine by giving people greater authority to make decisions and a chance to exert greater control over their lives.

PASS is a service that helps Rhode Island families of children with special health care needs. PASS workers provide assistance by guiding and redirecting the child, providing opportunities for the child to interact with others in home and community settings, and hands on assistance if needed.

The Family-Directed Respite program for adults provides relief workers so that primary caregivers have some time off for themselves. At present, this program serves family members who provide care for people with Alzheimer’s disease or families providing care for persons age 60 or above.

Family-Directed Respite for Children is a program that allows parents or guardians caring for a child in Rhode Island with disabilities to have time off. To be eligible for the program, a child must need an institutional level of care best described as the type of care typically provided in a hospital, nursing home, or intermediate care facility for people with mental retardation (ICF/MR).

To learn about eligibility for a free subscription to Rewarding Work or to learn more about Rhode Island’s consumer-directed programs, contact the following agencies: For PersonalChoice, contact Pari Independent Living Center in Pawtucket at 401-725-1966, email sbilodea@pari-ilc.org or Tri-Town Elder Care in Johnston at 401-351-2750 or email ltuttle@tri-town.org.

For information about Respite Services for Adults, contact the Diocese of Providence at 401-421-7833.

For PASS and Respite for Children, call one of the following CEDARR Family Centers (CFC): About Families CEDARR: 401-365-6855, Empowered Families CEDARR: 401-365-6103, Families First CEDARR: 401-444-7703 and Solutions CEDARR: 401-461-4351. These centers will provide families with more detailed information and help them apply for the program.

To learn about opportunities working as a direct support professional or personal care assistant in Rhode Island, call toll free at 866-211-WORK (9675) or visit www.rewardingwork.org on the Internet.

From the Coalition of Safe Minds, www.safeminds.org, 1/7/2008

A paper* was published today on autism rates and thimerosal exposure. The authors, Robert Schechter and Judith Grether, used the California Department of Developmental Disabilities (DDS) data on autism enrollments over time and compared them to thimerosal exposure rates. They conclude that "the DDS data do not support the hypothesis that exposure to thimerosal during childhood is a primary cause of autism."

SafeMinds examined the DDS data set, the thimerosal exposure information in the paper, and Schechter and Grether's interpretation of the findings as summarized in their concluding statement above. SafeMinds arrives at a different interpretation of the findings, showing that the data can equally support a primary causative role of thimerosal if autism causation is multifactorial. Vaccine components and environmental mercury, as well as other toxicants, are additional likely candidates. Deficiencies of the DDS data and imprecise thimerosal exposure assumptions make determination of the contribution of thimerosal to autism rates difficult. The increases in autism cases reported by Schechter and Grether since the 1980s highlights the urgency of the autism epidemic and the need to institute a rigorous and comprehensive environmental factors research program.

The SafeMinds analysis will be available shortly at www.safeminds.org.

* Schechter R., Grether JK. Continuing Increases in Autism Reported to California's Developmental Services System. Arch Gen Psychiatry. 2008. Vol 65(1); 19-24.

The Fight For Autism

http://www.denverpost.com/search/ci_7838774?source=email

 

Special-education Changes Approved

http://www.projo.com/news/content/regents_20_12-20-07_RK8ASPN_v19.27d71bb.html
 

Progress in Understanding "Model" Syndromes May Lead to Breakthroughs in Understanding Autism

http://www.autismspeaks.org/science/science_news/understanding_model_syndromes.php

"HEALTH Announces Partnership with VNS Home Health Services
 to Provide Home Visits to Vulnerable Infants"

The Department of Health (HEALTH) announced today a new partnership in its home visiting program that supports the healthy development of  vulnerable infants. The Family Outreach Program provides home visits to  approximately 6000 babies who have significant risk factors for early  developmental delays. Through the program, visiting nurses evaluate  these children and ensure that they are referred to the services they need to stay healthy.

 On August 30th, HEALTH received notification that VNA of Care New  England (one of the subcontractors of the Family Outreach Program) would  no longer be providing home visits to families in Providence, Northern  Rhode Island, and Kent Counties as of October 1, 2007. Today, HEALTH  announced a new partnership to provide services in those areas. A  contract has been signed between HEALTH and VNS Home Health Services in  Narragansett, which is part of the South County Hospital Healthcare  System. VNS Home Health will continue to serve Southern Rhode Island,  and has expanded to provide home visiting services in Kent County. In  addition, VNS Home Health Services has sub-contracted with three local  agencies to provide services in Providence and Northern Rhode Island.  Children's Friend and Service will serve Providence, Central Falls,  Pawtucket and East Providence. Meeting Street Center will serve  Providence, Cranston, and Johnston. Thundermist will provide services in  Burriville, Cumberland, Foster, Glocester, Lincoln, North Providence,  North Smithfield, Smithfield, Scituate and Woonsocket. Visiting Nurse  Services of Bristol and Newport Counties will continue to provide  services for the East Bay and Barrington and Bristol.
 
"This transition for the Family Outreach Program took a tremendous  amount of effort and cooperation from everyone involved," said Director  of Health, David R. Gifford, MD, MPH. "VNS Home Health Services, Children's Friend and Service, Meeting Street Center, and Thundermist  Health Center have put forth time and resources to help us make sure we  can meet the needs of families and children throughout the state. We  are grateful for their work in providing critical services for our most vulnerable families with new babies."
 

"Superintendent apologizes to teachers, vows better communications"

http://www.projo.com/ri/providence/content/mc_supt_10-24-07_Q27JITO.2eff6a8.html

 

"In Their Own Words: Supreme Court Gives Schools Too Much Credit"

http://www.autismspeaks.org/community/ownwords/intheirownwords_mayerson_singer.php

 

"In Their Own Words: Finding Balance"
http://www.autismspeaks.org/community/ownwords/intheirownwords_sne_speech.php

 

"State Must Cope With Autistic Adults"

http://www.dailynews.com/search/ci_6932193?IADID=Search-www.dailynews.com-www.dailynews.com

 

"The Most Important Choice"

http://www.autismspeaks.org/community/ownwords/intheirownwords_fiona.php

"Easter Seals and the Autism Society of America (ASA) Launch New Partnership"

Easter Seals and the Autism Society of America (ASA) have created a new partnership that will address the significant needs of individuals with autism and their families. The partnership was formally announced at ASA’s 38th National Conference in Phoenix on July 12.

Easter Seals, as the nation’s leading provider of services and support for children and adults living with autism today, and ASA, as the largest and oldest autism advocacy and family support organization in the world, bring a unique wealth of knowledge and services to the many people, families and professionals who face autism and its many challenges across the lifespan. Together, the two established and grassroots organizations have crafted a shared vision and plan to pilot programs and initiatives that will help improve the lives of individuals living with autism.

For more information about Easter Seals services for individuals with autism, visit www.easterseals.com/autism.

 

"Parents denounce state of special education"

http://www.projo.com/ri/providence/content/mc_special26_07-26-07_ST6GPUI.35de28a.html

 

"Schools Beat Back Demands For Special-Ed Services"

http://online.wsj.com/article/SB118524665215575918.html

 

"My Brother Vinnie"

http://www.autismspeaks.org/community/ownwords/intheirownwords_lucy.php

 

"Treating autism with mind games"

http://www.projo.com/health/content/q_mind29_06-29-07_FR6729S.94fc40.html

 

"Asking the Wrong Questions"

by Dr. Mel Levine

http://www.dunninstitute.org/uploaded_docs/MelLevineArticle.pdf

 

From autism-resources.com:

"Advice to Parents Who Discover Their Child is Autistic"

http://www.vaporia.com/autism/advice-to-parents.html

The letter from Michelle McCormick (4th from the bottom) tells of her search for a diagnosis with wit and humor.

From Discovermagazine.com:

"Autism: It's Not Just In The Head"

http://discovermagazine.com/2007/apr/autism-it2019s-not-just-in-the-head/?searchterm=autism

 

From Autism Speaks,

"MOM ASKS FOR UNDERSTANDING"

http://www.autismspeaks.org/community/intheirownwords_tepas.php

 

The Famous "Holland Essay" (Click on Welcome to Holland)

http://www.angelfire.com/ky/touristinfo/

Rebuttals:

http://www.brainchildmag.com/essays/summer2005_cornfield.html

http://www.parentmentors.org/Parent%20Talk.htm

http://www.angelfire.com/in4/farewelltoholland/